I’m feeling really positive today…1 week on. I can’t believe my precious little flower is 1 week old today. Last Saturday was so frightening and a bit of a blur. The last week has gone so quickly, yet so slow and has been such a rollercoaster. It is such a milestone to reach the 1 week mark, with “touch wood” very few complications, but we’re still taking it day by day…
What a little star she is. I got down to the unit and was told by her nurse for today Andrea that she was coming off CPAP (the oxygen machine, which keeps her lungs inflated). CPAP covers most of her face and head, so it’s hard to see her properly. She wasn’t keen when Andrea was taking it off and had a proper tantrum, kicking and screaming. The CPAP machine has been replaced by high air flow – two little prongs up her nose, which pumps air up her nose. She will need to work a lot harder to breathe for herself with less support and the oxygen. Andrea said we’ll monitor her for a while; if her heart rate increases or she is struggling she may go back on CPAP, but it’s a step in the right direction!
She also had a good night and her temperature came down and she’s still taking milk, which are all positives. She’s still on antibiotics for 48hours, but hopefully she doesn’t have an infection.
I’m feeling a lot more positive today, yesterday was a bit emotional and up and down, but I had a good night sleep (5 hours straight) lovely shower this morning feeling ok. My BP is still quite up and down and was a little raised this morning, but I’ve had my morning medication so we’ll see…you just can’t predict it.
I also had to have a kidney scan this morning. This was to see if there were any underlying issues with my kidney function which could be affecting the BP. The scan looked OK at first view, but the consultants will need to check it. I’m also back on collecting my urine for 24hours. I managed to fill the pot before I went to bed, which Phil and I always find quite amusing! I’m now on my second pot…don’t think I’ve got any issues on that front!
Lets see what this afternoon brings…