Well, I didn’t think I’d be spending my first wedding anniversary in the hospital and have a new baby here! Phil and I got married a year ago today and what a year it has been. This whole experience has brought us even closer together – if that could have been possible. We have cried together, laughed together and it is our strength that has seen us through this really hard time and will continue.
We were given permission by the consultants to leave the hospital today and just stepping outside felt so nice. I opened down the windows in the car and was like one of those dogs you see with it’s ears waving in the wind sticking it’s tongue out…it has been a long time! Neo Natal unit is very humid to keep the babies warm, so it was lovely to have some proper air.
One of the nurses had recommended us a little country pub and it was great – proper food in nice surroundings. It was bliss – we didn’t need much other than being together, but it feels like it might be the start of getting out and about and getting better.
I always find it so hard saying bye to Phil when he leaves. I don’t mind being on my own and sometimes it’s quite nice to sit, be quiet and reflect, but the person who keeps me sane is not here. My emotions are all over the place – I’ve been so happy today and then back to being without him. He’s back tomorrow afternoon though for a few days hooray!
It looks like the cocktail of drugs might be starting to work now and my BP readings have been OK today…mind I never speak to soon as they usually start fluctuating round bedtime, so we’ll see.
I woke up early this morning as I knew April’s cares were at 6.30am – it’s basically giving her a wash and changing her nappy. No poo today, but she’d done some in the night, so her bowels are working ok!
Her temperature has gone down, but they’re keeping her on the antibiotics for another 3 days in case. They have also upped her dose of milk from 5ml, to 7ml and this evening 9ml every 2 hours. She must like mummy’s special medicine…she’ll soon be catching me up!
She has also put on an ounce and now weighs 2lb 6oz, which is great and i got to dress her for the first time too – a special outfit to see Daddy – her “Sunday Best“
Yesterday she came off CPAP on to high air flow and today it was reduced from 6 to 5…when we get to 0, she won’t have any assisted breathing, which is fantastic, but like we say we take it one day at a time as she could be back on the ventilator tomorrow! We want her to grow strong, but not progress too quickly, so she ends up taking a step backwards!
After her cares I got another cuddle. The unit was pretty empty and I was in my PJs in a recliner chair…she fell asleep and I could have joined her. it was lovely. It is those moments that keep me going!